We all labor against our own cure, for death is the cure of all diseases.
This memorial website was created to remember our sweet precious daughter Willow Ansley Jaynes who was born in Tennessee on August 10, 2009 and passed away on August 10, 2010. You were taken way to soon from us. We miss you dearly and think about you constantly! Love, Mommy and Daddy!!!!!
Willow Ansley Jaynes was born on August 10, 2009 at The Med in Memphis TN. We found out something was wrong with our precious baby one week before I delivered. That was one of the most horrific moments a parent can ever imagine. The night she was born I only saw her breifly after an emergency c-section. She was polka dotted, which I would later find out is called petechia. We had a 9 day stay in the NICU. Multiple test were ran trying to figure out what was wrong with my sweet Willow. She was tested for CMV virus, histiopsytosis, and taxoplasmosis, just to name a few. On our 9th day there her team of doctors came to me and told me we were being transferred to St. Jude. All the test they had ran had come back negative and they thought she either had leukemia or neuroblastoma. Two horrible cancers that I prayed my daughter did not have. We were transfered to St. Jude by ambulance, when we got there everyone was very nice to us. She was scheduled for a bone marrow biopsy the next day. For those of you who do not know what that is, it is where they drill into both hips to extract marrow from the bones. My daughter underwent this procedure at 10 days old. The test came back inconclusive, but with wierd results. She would later under go two more bone marrow biopsies, a liver biopsy,and a skin biopsy( from the top of her head). The first time I had to put her to sleep was horrible, but the worst part I would come to figure out later on is when your precious baby cries because they are hungry and you can't feed them because they are NPO. This is one of the most heart breaking moments of a parents life. We were finally diagnosed with Gaucher's Disease at 6 months of age. The first thing I did was google it. That was heart wrenching, I found out most babies diagnosed that young were definately going to die, usually before 2 years of age. Gaucher's affected her hemoglobin (red bloodcells), platelet count, growth, development, neurological, liver, spleen, swallowing reflexes, and her respirtory. I prayed that my daughter would be one of the lucky ones to beat the disease. I kept her at home never exposing her to the world. She did not get any kind of sickness untill she was 7 months old. She then got bronchilitas which put us in LeBonhuer for a month. While we were there numerous other problems were uncovered. By the time we left the hospital she had a central line and was not able to eat anything by mouth. It was very scary coming home, but i learned how to administer meds 3 times a day by IV, hook her up to her IV daily, change her dressing, pull blood, and test her sugar. She was hooked to an IV pole for 17 hours a day. My daughter never got to taste things like ice cream, milk, or applesauce. We were home for 5 months and everything was going good. She had made it to 11 pounds, into size 2 diapers, and 6 month clothes. We were scheduled for a swallow test (to see if she could go back to eating by mouth), one year check-up, and one year pictures. I woke up on August 10,2010 ready to wish my baby girl a Happy 1st Birthday and found that she had passed. My worst fears had come true. I was shocked, she had been doing so well. The past months have been very hard for me and my family. I think the only thing that keeps me going is that she is resting comfortably in the arms of the Lord and she no longer knows sickness. I miss my sweet Willow and can not wait to be reunited with her one day!